Butterfly Blog

The posts on this blog are from an anonymous parent of one of our Love Bus kids, but her experiences in having a son with childhood cancer are shared by many parents and caregivers. Any guest posts submitted to us by other parents will be labeled as such.

Ryan Judd, board-certified music therapist and owner of The Rhythm Tree in southern NH, speaks with Catherine, the mother of Zoe, a Lucy's Love Bus child who received music therapy with him while undergoing treatment for her brain tumor.

I have had it up to here with my pantry for months. Crap keeps getting thrown in there, and I couldn't find anything. So today, on a quiet Monday, I decided to clean it out. It had never really been organized when we moved in our house over three years ago, so I took everything off the shelves and got down to business...

The world lost an incredible young girl this week, and her parting makes the world a less bright and happy place.

When I met Beecher, the founder and director of Lucy's Love Bus, I was, quite simply, bowled over by her. I was amazed at her capacity for goodness despite the pain she has endured...

I have always kept my hair long with the exception of a less than stellar bowl cut in the first and second grade and the ever so stylish mullet that followed in the third grade. My hair has seemingly been my entire identity sitting on top of my head...

It's been a very long while since I last wrote--much longer than I had anticipated. Part of the reason is good--time has gotten away from me because we've been visiting with family, we've been busy, and life has been, as I've said before, "normal". Part of the reason is bad--I am sick, sick, sick of cancer, and I don't want to deal with it in any more of a capacity than I already do in everyday life...

This weekend was my second Mother's Day as a Cancer Mom. Last year, we were in the middle of Delayed Intensification II, and while I think I may have suppressed the memory, I believe I spent much of the day dealing with vomit. This year's was much better until our emergency ER trip at 11pm...

It has been a while since I wrote my last blog. Being in Maintenance allows us a level of freedom and opportunity that was missing from our family's life for a year. My son is in preschool. He is happy, growing, and thriving. He is, to everyone who meets him, a very typical preschooler...

There is, obviously, nothing good in the world about childhood cancer. It's an evil abomination that should never be visited upon any child or family. The complete randomness of it is maddening; there is no rhyme or reason to whose child gets cancer...

As any parent whose child has gone through chemotherapy can attest, childhood cancer brings a host of challenges, issues, and difficulties to a family. One of the hardest things that a parent of a child with cancer must face is the loss of security...

My son was diagnosed with ALL in June, 2013. As any parent whose child has received a cancer diagnosis can attest, life and what you thought you knew about it changes in the few seconds it takes to hear that your child has been diagnosed with cancer...