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Ilene's Caregivers

Respite Care for Caregivers

Ilene’s Caregivers was launched in 2022 to complete the circle of caring at Lucy’s Love Bus by providing essential support services for our Love Bus children’s parents, guardians, and caregivers. Ilene’s Caregivers offers a menu of self-care and respite options to support parents and caregivers through the long journey of caring for a very sick child and their sibling(s). Our pilot program is currently being offered to families of our Lucy's Children participants in Massachusetts that are: single parent families, families with a child at end-of-life (advanced cancer, relapse, or poor prognosis), or families with a child who is coping with ongoing late effects of cancer treatment. This program is generously funded by The Ilene Beal Foundation and Parmenter Foundation.

Current offerings in the Ilene's Caregivers program include:

  • Respite care in the home
  • Support from an Independent Healthcare Advocate
  • Respite Retreats at Little River Farm and partner locations
  • Home visits/End of Life Doula Care

 

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